Elizabeth Dole Foundation
Hidden Heroes
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Hidden Helpers Survey

Helping Health Care Professionals Better Understand Military Caregiving Families and Children


Seeking Military Caregiving Families to Provide Input

Nemours Children’s Health and the Elizabeth Dole Foundation are seeking adults from military caregiving families to take part in a web-based survey and/or virtual focus group as part of a research project. *Please note that the virtual focus groups are at capacity, but we still encourage you to take the online survey.

What You Need to Know to Take the Survey

The Hidden Helpers Coalition is a joint effort of the Elizabeth Dole Foundation, Wounded Warrior Project® (WWP), and the Biden Administration’s Joining Forces initiative. The 75+ member organizations in the Coalition work to fill gaps in support and services for children and adolescents that live in homes with wounded, injured, or ill service members and veterans.

A major research study focused on military caregiver children and adolescents surfaced gaps and needs among hidden helpers, including the need to provide clinicians with training and resources to better connect with, and care for, military caregiving children/teens.

As a member of the Hidden Helpers Coalition, Nemours Children’s Health has committed to develop a collection of trainings and other resources designed for health care professionals to increase their ability to connect with, and care for, military caregiving children/patients and their families. Nemours Children’s is developing the collection in partnership with the Elizabeth Dole Foundation (EDF).

To help understand what’s needed in the collection of trainings and resources, Nemours Children’s and EDF are seeking input from parents/guardians of military caregiving children (i.e., children who help provide care and support to a parent with service-related injuries or illnesses) through a research project.

Participants must be:

  • Parents/guardians of a child (or children) living in a military caregiving home
  • Fluent in English
  • Age 18 or older

Nemours Children’s and EDF are collecting feedback via a web-based survey and virtual focus groups.

Web-Based Survey:

  • Time involved: Approximately 10 minutes
  • Unlimited number of participants can respond
  • No gift card or other incentive for participation.
  • Survey will be open from Oct 28, 2022 until January 31, 2023
  • To see a copy of the survey questions, CLICK HERE
  • To complete the anonymous survey, CLICK HERE

Virtual Focus Groups:

  • Time involved: Approximately 60 minutes
  • Maximum of 28 participants, taken on a “first come, first served” basis. Four focus groups will be held, with a maximum of seven participants per session. *Virtual focus groups are filled. We encourage you to take the web-based survey if you would like to still participate in this study.
  • Participants who attend the virtual focus groups will be given a $25 Amazon e-gift card in recognition of their voluntary contribution of subject matter expertise.
  • To see a copy of the questions, CLICK HERE
  • Focus group dates and times are as follows:
    • Wednesday, November 30th @ 6:30 pm ET
    • Thursday, December 1st @ 1 ET
    • Saturday, December 10th @ 11 am ET
    • Thursday, December 15th @ 7 pm ET

Consent Forms

To participants in this clinical survey, please download and read the following consent forms. These forms explain the research, your rights as a research participant, and any responsibilities that you may have as a result of your participation.

Questions?

For more information, please contact Kate Blackburn at Nemours Children’s Health by email at [email protected] or by cell at 302-650-2328.

For questions regarding the rights of research participants, call the Nemours Office of Human Subjects Protection at 302-298-7613 or email at [email protected].